Sunday, January 13, 2008

The Miracle that is Alex (This is long and just a rambling of thoughts)



It was exactly 6 years ago today that I went into the hospital to deliver my first baby. I knew this would be a new learning experience but I was so excited to start the journey called motherhood. Little did I know how much my little boy was going to teach me about our gospel plan.
On Wednesday January 16th, Dr. Ashton was doing the going home exam and Andy and I were getting the bags packed and ready to take our baby home. The doctor felt something that he thought was a pronounced liver, he was not too concerned about it but he wanted to do some tests. Alex had numerous blood tests done and an ultrasound. We would not be given the accurate diagnosis until he was 8 days old. They kept us in the hospital until the 18th when they finally released us to go home. We had an appointment with Primary Children's the following Tuesday. I remember that day and it was a day of hell. We went from test to test to test with no one telling us anything at all. Alex had to drink contrast for the CT Scan, that was fun. I just held my baby the whole time and tried to tell him it would all be ok. I was scared to death inside not knowing what we may be up against. After all the tests were done we were still told nothing except to come back and meet with Dr. Wagner in Oncology the next day. Oncology, what, my mind was reeling. I knew what that word meant but there was no way that my baby could have the awful C word. Please God, no.
The next day it was confirmed he had stage 4S cancer. In stage 4S, the following are true:
the child is younger than 1 year; and
the cancer has spread to the skin, liver, and/or bone marrow; and
the tumor is in only one area and all of the tumor that can be seen may be completely removed during surgery; and/or
cancer cells may be found in the lymph nodes near the tumor.
I knew what spreading to the liver meant it was his death sentence, my nine day old baby was going to die and I had to be the strong one for him. I had to tell him it was all going to be ok. But was it? They did a few more tests and scheduled him for a biopsy on February 4th, the anniversary of me entering the MTC. Coincidence? I do not think so. That was a spiritual journey that I entered that day and now I was in for another of the most trying times of my life. We blessed Alex on the 3rd so he would have all of the ordinances possible in case the worst happened.
On the 4th we took him in for the biopsy first thing in the morning. By 5 o'clock he was still not out of surgery I was panicking. I was calling all over the hospital to find out why the 2 hours surgery was taking so much longer. Finally they called me and said they had given him to much anesthesia and that he would need to stay in NICU for the night. (See part 2)

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